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Table 1 Demographic and household characteristics of participants

From: ‘If I am playing football, I forget that I have this virus’: the challenges and coping strategies of adolescents with perinatally acquired HIV in KwaZulu-Natal, South Africa

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Gender

Age

Relationship status with parents and household composition

Household members’ HIV and ART status

1

M

16

Lives with his mother and abusive stepfather. His relationship with his mother is not easy due to the stepfather. He has never met his father, but they have spoken on the phone

Mother on ART. Stepfather unaware of mother and participants HIV and ART status

2

M

19

His mother is deceased, so he lives with grandmother and aunt. His father has remarried, but supports him and during the holidays the participant stays with him

Grandmother and aunt on ART

Father is also on ART

3

F

18

Mother died at birth of the participant. She lives with siblings, cousins and grandfather. The participant has never had any contact with father. She doesn’t know if he is alive or not

Participant is the only one in the household on ART

4

F

16

She lives with her mother, father and siblings and has a good relationship with both her parents

Mother and father are on ART

5

M

19

His mother is deceased, so he lives with grandmother, siblings and cousins who also lost their mother to HIV. He has met his father, but has no regular contact with him. His father does not support him and has no part in his life

Father is on ART. Some of the cousins and siblings in the household are on ART

6

F

18

Her mother and father are both deceased. She lives with her grandmother but does have contact with her father’s side of the family

Only the participant on ART

7

M

17

When both mother and father died of HIV he was taken into an orphanage. He is now looked after by a foster family

Only the participant on ART

8

M

17

His mother is a domestic worker, so he lives with his grandmother. His mother has never spoken about his father, so he doesn’t know his father and whether he is alive or not

Mother is on ART

9

F

17

Both parents are alive, but have no contact with their daughter and do not support her in any way. Her mother lives with boyfriend and since birth has failed to look after her. Participant lives with her grandmother and aunt

Mother and aunt are both HIV-positive. Mother not taking treatment

10

M

17

He lives with his mother. His father is in prison and has no contact with his son

Mother is HIV-positive on ART

11

M

16

He lives with his mother. His father died of HIV

Mother is HIV-positive on ART

12

M

18

He lives with his mother. His father died of HIV

Mother is HIV-positive on ART

13

F

16

She was abandoned by her mother as an infant and has never met her. She has never met her father and knows nothing about him. She lives with a guardian

She does not know the HIV status of her guardian

14

M

19

His mother is deceased, but his father is alive. He lives with his father and stepmother

Father and stepmother on ART and supportive of him

  1. ART: antiretroviral therapy