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Table 3 Theme Progression

From: Exploring and understanding HCV patient journeys- HEPCARE Europe project

First round codes

Categories

Themes

Not know treatment was available, Not know there is new treatment, Not assisted in accessing treatment, diagnosed but not offered treatment

Lack of agency

Lost to Follow Up

treatment unavailable, strict eligibility requirements, cost, stigma, peer v HCP, waiting times, mistrust HCP

Barrier to accessing treatment

Homelessness, mobility, instability, complex lifestyles, cycle of addiction, mental health, HCV not priority, family problems, regret, IDU history, IDU

competing priorities

concerns about treatment, transmission fears, disclosure, HCV stigma, shame, burden, depression, HCV denial, want support, isolation

HCV fears

 

Never offered treatment, not access services, dislike hospital, HIV > HCV, background

HCV status unknown

HepCare improved access to treatment

Prison, appointments, resolve, want treatment, want support, HCV support, HCP experience, no judgement, new opportunities. HepCare vouchers

Access treatment

Adherence, motivation, treatment side effects, trust HCP, HCV symptoms, outreach services, addiction services, personal relationships

treatment experience

HCV free, positive outlook, new opportunities, self-care, mental health, resolve, personal motivation

HCV free

Alcohol use, sharing gear, transmission fears, confidence in treatment, risk reinfection, HCV misinformed, HCV peer discussion

awareness

HCV education