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Table 2 Participant responses to Questionnaire 2 assessing HBV knowledge (N = 48)

From: Health literacy in patients with chronic hepatitis B attending a tertiary hospital in Melbourne: a questionnaire based survey

Knowledge questions Answer No. %
Why are you coming to this clinic? Hepatitis B 43 78
Hepatitis 3 5
Other (incorrect/unsure) 9 16
What causes hepatitis B? Concept of Virus 19 44
Concept of something attacking liver/infection 3 7
N = 43- Significant prompting
Incorrect 4 9
Unsure 17 40
How can hepatitis B affect your body? Affects the liver 36 65
Jaundice 2 4
Fatigue 5 9
Multiple answers allowed Asymptomatic 7 13
Liver damage, cirrhosis 6 11
Liver cancer 10 18
Incorrect 3 5
Unsure 14 24
Emotional/stigma 5 9
Can Hepatitis B be spread to someone else? Yes 50 91
No 2 4
Unsure 3 5
How can hepatitis Be spread to someone else? Sexual transmission 27 49
Blood contact 35 64
Unprompted
Multiple answers possible
Needle contamination 7 13
Perinatal 9 16
Medical contamination 5 9
Other- Bodily fluids, Nail clipping, Saliva 13 24
Incorrect 4 7
Prompted Transmission: No. % correct Sharing food 41 75
Sexual Contact 49 89
Contact with infected blood 51 93
Kissing 26 47
From mother to child during birth 45 82
Unclean needles 48 87
Breathing 44 80
Mosquitoes 23 42
Blood transfusion 50 91
Unclean medical equipment 47 85
Why are you being treated/starting treatment for Hepatitis B? N = 31 Mentioned virus only 10 32
Mentioned liver damage only 11 35
Mentioned both 2 7
Unsure/Incorrect 8 26
Those on treatment N = 29 (53% of cohort) Correctly named medication 16 55
Indefinite antiviral course 22 76
Never skip dose 21 72
Do you know why you are not being treated for Hepatitis B? N = 24 (44% of cohort) Mentioned virus 8 33
Mentioned liver damage 2 8
Mentioned both 2 8
Unsure/Incorrect 10 42
Other 2 8
Is there anything you can do to improve your Hepatitis B? Multiple answers allowed N = 51 Yes 43 84
Reduce alcohol 24 47
Stop smoking 7 14
Lose weight/exercise 10 20
Treatment 5 10
Other- Iron and Vit D supplement, being healthy 2 4
Incorrect 7 13
Do you feel comfortable telling family and household members about this condition? Yes 51 93
No 4 7
Do you feel comfortable telling friends and people you work with? Yes 19 35
No 36 65
Do you usually understand what the doctor tells you about Hepatitis B? Yes 52 95
No 3 5
Do you think the explanation of Hepatitis B by your doctor was adequate? Yes 50 91
No 5 9
Other medical conditions Yes 36 65
No 19 35
  1. This question was not answered correctly during the piloting period, therefore these participants were not included in the results for this question. All the other participants received significant prompting such as: “What is hepatitis B in your body? Is it a germ, or microbe, or something else?” The results of this question were not included in the knowledge assessment, as the question was often misunderstood and therefore appears not to be a good assessment of knowledge.
  2. For transmission questions, patients were first asked if HBV could be spread to someone else, and if yes, how it could be spread. They were then prompted as to whether HBV can be spread by sharing food, sexual intercourse, and so on.