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Table 2 Participant responses to Questionnaire 2 assessing HBV knowledge (N = 48)

From: Health literacy in patients with chronic hepatitis B attending a tertiary hospital in Melbourne: a questionnaire based survey

Knowledge questions

Answer

No.

%

Why are you coming to this clinic?

Hepatitis B

43

78

Hepatitis

3

5

Other (incorrect/unsure)

9

16

What causes hepatitis B?

Concept of Virus

19

44

Concept of something attacking liver/infection

3

7

N = 43- Significant prompting

Incorrect

4

9

Unsure

17

40

How can hepatitis B affect your body?

Affects the liver

36

65

Jaundice

2

4

Fatigue

5

9

Multiple answers allowed

Asymptomatic

7

13

Liver damage, cirrhosis

6

11

Liver cancer

10

18

Incorrect

3

5

Unsure

14

24

Emotional/stigma

5

9

Can Hepatitis B be spread to someone else?

Yes

50

91

No

2

4

Unsure

3

5

How can hepatitis Be spread to someone else?

Sexual transmission

27

49

Blood contact

35

64

Unprompted

Multiple answers possible

Needle contamination

7

13

Perinatal

9

16

Medical contamination

5

9

Other- Bodily fluids, Nail clipping, Saliva

13

24

Incorrect

4

7

Prompted Transmission: No. % correct

Sharing food

41

75

Sexual Contact

49

89

Contact with infected blood

51

93

Kissing

26

47

From mother to child during birth

45

82

Unclean needles

48

87

Breathing

44

80

Mosquitoes

23

42

Blood transfusion

50

91

Unclean medical equipment

47

85

Why are you being treated/starting treatment for Hepatitis B? N = 31

Mentioned virus only

10

32

Mentioned liver damage only

11

35

Mentioned both

2

7

Unsure/Incorrect

8

26

Those on treatment N = 29 (53% of cohort)

Correctly named medication

16

55

Indefinite antiviral course

22

76

Never skip dose

21

72

Do you know why you are not being treated for Hepatitis B? N = 24 (44% of cohort)

Mentioned virus

8

33

Mentioned liver damage

2

8

Mentioned both

2

8

Unsure/Incorrect

10

42

Other

2

8

Is there anything you can do to improve your Hepatitis B? Multiple answers allowed N = 51

Yes

43

84

Reduce alcohol

24

47

Stop smoking

7

14

Lose weight/exercise

10

20

Treatment

5

10

Other- Iron and Vit D supplement, being healthy

2

4

Incorrect

7

13

Do you feel comfortable telling family and household members about this condition?

Yes

51

93

No

4

7

Do you feel comfortable telling friends and people you work with?

Yes

19

35

No

36

65

Do you usually understand what the doctor tells you about Hepatitis B?

Yes

52

95

No

3

5

Do you think the explanation of Hepatitis B by your doctor was adequate?

Yes

50

91

No

5

9

Other medical conditions

Yes

36

65

No

19

35

  1. This question was not answered correctly during the piloting period, therefore these participants were not included in the results for this question. All the other participants received significant prompting such as: “What is hepatitis B in your body? Is it a germ, or microbe, or something else?” The results of this question were not included in the knowledge assessment, as the question was often misunderstood and therefore appears not to be a good assessment of knowledge.
  2. For transmission questions, patients were first asked if HBV could be spread to someone else, and if yes, how it could be spread. They were then prompted as to whether HBV can be spread by sharing food, sexual intercourse, and so on.