Cohort | Diseased cohort (i.e. CAP patients)During home visit; Contact at baseline | Non-diseased cohort (i.e. unaffected (no CAP) persons)During home visit; Contact at baseline | Diseased/non-diseased cohortPer post; Contact at 1, 6 and 12 months |
---|---|---|---|
Data collected: | |||
Demographic data | ➣ Current living situation | ➣ Current living situation | ➣ Current living situation |
Quality-of-life data | |||
➣ 5-item EQ-5D instrument & VAS [22] | ➣ As on day of interview | As on day of interview | As on day of interview |
➣ Referring back to worst moment of CAP episode | |||
➣ Referring back to time previous to CAP episode | |||
n.a.b | |||
Co-morbidities | |||
➣ Stroke and/or cardio-vascular event | ➣ Since participating in CAPiTA; | ➣ Since participating in CAPiTA, | ➣ Since last contact moment; |
➣ 28-item standard list of major comorbid diseases developed by Statistics Netherlands | ➣ 28-item standard list of major comorbid diseases | ➣ 28-item standard list of major comorbid diseases | n.a.b |
Medical resources used: | |||
➣ Medication used | ➣ Previous to hospital admission to treat CAP; | n.a.b | ➣ Since last contact moment; |
➣ GP; emergency department and other medical specialist consultations (phone; office and home consultation(s)) | ➣ Previous to hospital admission to treat CAP; | n.a.b | ➣ Since last contact moment; |
➣ Outpatient visit(s) and treatment(s) | n.a.b | n.a.b | ➣ Since last contact moment; |
➣ Hospital admission(s) and treatment(s) | n.a.b | n.a.b | ➣ Since last contact moment; |
➣ Institutional care admission(s) others than hospital | n.a.b | n.a.b | ➣ Since last contact moment; |
Home care | |||
➣ Professional home care used | ➣ Previous to hospital admission during the CAP episode? | In month previous to interview | ➣ Since last contact moment; |
Productivity losses due to absence from patient/control from unpaid work (including replacement) | |||
➣ Is unpaid work conducted on a regular base. | ➣ Previous to CAP hospital admission | n.a.b | ➣ Since last contact moment; |
➣ Absent from unpaid work: For how long. Who took the work over? | ➣ Previous to hospital admission during the CAP episode? | n.a.b | ➣ Since last contact moment; |
Productivity losses due to absence of caregiver(s) from (un)paid work | |||
➣ Informal home care used: By who? And for how long? | ➣ Previous to hospital admission during the CAP episode | n.a.b | Since last contact moment; |
Travel costs: | |||
Method of transport and cost | ➣ To hospital when admitted with CAP | n.a.b | n.a.b |
➣ After discharge from hospital to home/nursing home | n.a.b | n.a.b | |
Other cost/out-of-pocket expenses (open question) | n.a.b | n.a.b | ➣ Since last contact moment; |